My Dear Family and Friends,

We were visited by James team of Doctors this morning. James and his tissue samples were the subject of a medical conference. They have diagnosed him with Castleman's Disease (my type of the disease is Hyaline Unifoacl). In English: a overgrown lymph node. This is a benign mass. At this point he does not have Cancer. The Doctor said he basically had just won the lottery!There were decades of experience at the table and only one Doctor had ever seen a case. Most of them had never even heard of it. This is an extremely rare, and uncommon disease. It is caused by a virus. He most likely got the virus years ago. The treatment is removal of the mass. He will have regular PET Scans ( radioactive contrast scan of lymphatic system) of my whole body, if the tissue they couldn't remove starts to grow again, he will undergo radiation to kill the remaining tissue.  The recurrence in other lymph nodes throughout the body is very low, but possible. This is about all we have been told because they just don't know enough about the disease.  As they get us more information we will share what we know with you. Below is some information from the Mayo Clinic regarding Casstleman's Disease. 

By Mayo Clinic:

Castleman disease is a rare illness that affects your lymph nodes and other immune-cell structures of your body.

Also known as giant lymph node hyperplasia and angiofollicular lymph node hyperplasia, Castleman disease is classified as a lymphoproliferative disorder. That means it involves an overgrowth (proliferation) of lymphatic cells. This makes Castleman disease similar to cancers of the lymphatic system (lymphomas), which also are characterized by cell overgrowth. Castleman disease isn't considered a cancer, but it is associated with a higher risk of a type of cancer called lymphoma.

Castleman disease can occur in a localized or a more widespread form. Treatment and outlook depend on which type of Castleman disease you have.

We feel so very blessed, and thankful. We are humbled by the overwhelming show of love, prayers and support on our behalf. There are no words to describe the peace and joy we are feeling now. We are so grateful to have such amazing families, and such incredible friends!

THANK YOU... THANK YOU... THANK YOU...

ALL OUR LOVE~ JAMES, SYDNEY, JESSE AND MASON